A woman whose sister was diagnosed with seemingly harmless ‘pins and needles’ cancer has shared her story to warn others about the unusual symptoms.

When Lydia Carfrae-Brohska, from Wakefield, West Yorkshire, first started experiencing tingling, she didn’t think anything of it, but the symptoms quickly spread to her legs and eventually left her unable to use the left side of her body. Had to fight for

Tragically, in August 2018, doctors confirmed the worst – cancer – and gave Lydia just 12-18 months to live.

She fought for two years, but died on 22 May 2020, aged just 36 – with her mother, Vicky, her husband Stu and sister, Carrie Carfrae by her side.

Lydia Carfrey-Brohska, from Wakefield, West Yorkshire, passed away in May 2020 after being diagnosed with a brain tumor

Carey is heartbroken but has opened up about the traumatic experience to warn others about the unusual symptoms of cancer – and has penned a loving tribute to her ‘soulmate’.

Carrie said: ‘I would rather spend 36 years with Lydia than an entire life with any other person – even though the pain of losing her is so hard to bear.

‘She was my soulmate and always will be; My one love in the truest, purest sense of the word.

Lydia's symptoms quickly spread to her legs and she eventually struggled to use the left side of her body.

Lydia’s symptoms quickly spread to her legs and she eventually struggled to use the left side of her body.

Lydia, who was living in Texas when she was diagnosed, is pictured with her husband, Stu, during cancer treatment

Lydia, who was living in Texas when she was diagnosed, is pictured with her husband, Stu, during cancer treatment

Lydia lost her hair during cancer treatment but continues to show 'incredible courage'

Lydia lost her hair during cancer treatment but continues to show ‘incredible courage’

Lydia was given just 12-18 months to live after being diagnosed in August 2018

Lydia was given just 12-18 months to live after being diagnosed in August 2018

‘He fought and showed incredible courage; Not once did he miss an appointment, not once did he give up, not once did he say, “I don’t want to do this anymore – it’s too hard”.

‘Lydia accomplished so much in her last two years. She lived, roamed, met friends, had fun, created memories – she is and will always be an inspiration to all of us.

Lydia, a qualified solicitor, was diagnosed with stage 4 glioblastoma – an extremely aggressive form of brain cancer.

Lydia continues to stay positive and smiles for a photo with her mother, Vicky, during cancer treatment

Lydia continues to stay positive and smiles for a photo with her mother, Vicky, during cancer treatment

Carrie Carafre (left) shares her sister's story to warn others about the unusual symptoms

Carrie Carafre (left) shares her sister’s story to warn others about the unusual symptoms

Lydia, pictured left with her sister, was diagnosed with stage 4 glioblastoma - an extremely aggressive form of brain cancer

Lydia, pictured left with her sister, was diagnosed with stage 4 glioblastoma – an extremely aggressive form of brain cancer

From left: Carrie, Vicky and Lydia pose for a photo before Lydia's devastating diagnosis

From left: Carrie, Vicky and Lydia pose for a photo before Lydia’s devastating diagnosis

Over 20 months, Lydia underwent grueling chemotherapy and radiotherapy

Over 20 months, Lydia – pictured with her sister – went through several rounds of grueling chemotherapy and wore a wig after losing her hair

For over 20 months, she underwent multiple rounds of grueling chemotherapy and radiotherapy, all of which were carried out in the US as she was based in Texas at the time.

Lydia had access to pioneering treatment that is not currently available on the NHS, known as the Optune treatment.

The novel ‘tumor therapy’ uses an electromagnetic field to treat cancer and is widely available in the US and Germany.

In 2019, after months of treatment, Lydia begins to show improvement and decides to go on a belated honeymoon – a cruise along the Panama Canal with her husband.

But, in April of the following year, doctors discovered a new tumor in his brain.

In 2019, after months of treatment, Lydia begins to show improvement and decides to go on a belated honeymoon - a cruise along the Panama Canal with her husband.

In 2019, after months of treatment, Lydia begins to show improvement and decides to go on a belated honeymoon – a cruise along the Panama Canal with her husband.

Lydia (left) and her sister Carrie were extremely close and over the years formed a great bond

Lydia (left) and her sister Carrie were extremely close and over the years formed a great bond

Lydia (left) and Carey pose for a cute picture when they were kids

Lydia (left) and Carey pose for a cute picture when they were kids

Lydia, pictured with her dog Pompey, passed away in May 2020 - a month after doctors found a new tumor in her brain

Lydia, pictured with her dog Pompey, passed away in May 2020 – a month after doctors found a new tumor in her brain

‘Her doctor knew there was no more time,’ Carrie said. We were heartbroken and couldn’t believe this was the beginning of the end.’

Carrie and Stu make it their mission to bring Lydia back to the UK to live out her final months surrounded by friends and family.

Within 24 hours of learning about the new tumor, he had booked flights, packed and organized his apartment. He then flew from Houston to Heathrow in a first class cabin, bringing his dog Pompey with him.

Lydia with her husband Stu on their wedding day

Lydia with her husband Stu on their wedding day

Lydia (right) and her sister Carrie (left) were incredible singers and sang at a friend's wedding

Lydia (right) and her sister Carrie (left) were incredible singers and sang at a friend’s wedding

What is glioblastoma?

Glioblastoma is the most common cancerous brain tumor in adults.

They are growing rapidly and are likely to spread.

The cause of glioblastomas is unknown but may be related to the individual’s genes if the mutation results in cells growing uncontrollably, forming a tumor.

Treatment is usually surgery to remove as much of the tumor as possible, followed by a combination of radio- and chemotherapy (chemoradiation).

It can be difficult to remove all the growths because glioblastomas tend to spread to other areas of the brain. These are targeted through chemoradiation.

Glioblastomas are often resistant to treatment because they are usually made up of different types of cells. Therefore, the drug will kill some cells and not others.

The median survival time is between 12 and 18 months.

Only 20 percent of patients survive beyond one year and only three percent survive beyond three years.

Source: The Brain Tumor Charity

Carrie said: ‘It was a huge relief when she got home and Lydia’s doctors had warned she would start to deteriorate rapidly so there was a small window of opportunity when she would be well enough to go home.

‘We put a day bed in our conservatory so she can look out over the garden and talk to friends through the windows.

‘We played card games, watched TV and talked a lot. We were really blessed to have this precious time together.’

On Friday, May 22, 2020, Lydia passed away peacefully with her family by her side.

A small ray of light in the tragedy came from his charity and passion for raising money for the NHS, which he continued until the end.

Her family has since continued her legacy and set up the Lydia’s Wish Foundation – raising a total of £15,000 for Brain Tumor Research UK to help fund vital research.

Carrie says that her sister will be with her for the rest of her life and she hopes she is proud.

She said: ‘Lyd truly was the best sister I could have asked for, our love for each other was deep and unconditional.

‘It is incredibly important for all of us to raise both awareness and funding of research for brain tumours, so that other families do not have to endure the suffering that we all have.

‘Lydia lived her life with grace, great humor and love – right up to the end.

‘His presence will guide my life as a force of good and I will make him proud of me, as I was, and always will be, infinitely proud of him.’

Read more like this…

Revealed: Telling symptoms of throat and breast cancer, tennis legend Martina Navratilova diagnosed with both

Family heartbroken as 15-year-old schoolboy who died of brain tumor diagnosed with cancer just two weeks after his identical twin’s funeral

My girlfriend, 27, died eight weeks after being diagnosed with cervical cancer – now I want to fulfill her last wish

#Womans #needle #prick #turns #fatal #brain #tumor

Source link

Leave a Reply

Your email address will not be published. Required fields are marked *